
PROGRAM
The workshop included a series of short talks, two keynotes, one poster session and one panel. Recording will be available now.

VENUE
The workshop was held at the facilities of EPFL (École Polytechnique Fédérale de Lausanne), Switzerland, on the 15th of February 2018.

SPEAKERS
The workshop featured many invited talks by renown authorities of the computer security and personalized health fields.

REPORT
100+ scholars of various disciplines (medicine, biology, computer science, law, ethics,...) participated in the event. All the material (slides and videos) is now available online.
WORKSHOP PROGRAM
09:30 - 09:55 Registration & Coffee
10:00 OPENING SPEECH: Daniel Scheidegger (Pres. Swiss Acad. of Medical Sciences)
Session 1: Problems and requirements
10:15 KEYNOTE: Amalio Telenti (The Scripps Research Institute)
"The data of 150,000 human genomes"
10:55 Frank Ückert (Deutsches Krebsforschungszentrum)
"Work under German Data Protection Laws"
11:20 Effy Vayena (ETH Zurich)
"SPHN’s ethical framework for responsible data framework"
11:50 Emmanouil Dermitzakis (Univ. Geneva)
"Data privacy and protection in the era of multi-omics"
12:05 Gunnar Rätsch (ETH Zurich)
"Sharing Global Knowledge about BRCA1/2"
12:20 Karsten Borgwardt (ETH Zurich)
"The Personalized Swiss Sepsis Study (PSSS)"
Session 2: Solutions
14:45 Khaled El Emam (Univ. Ottawa)
"Large Scale Anonymization of Clinical Data"
15:10 Emiliano de Cristofaro (UCL)
"Cryptographic Protocols for Privacy-Preserving Genomic Testing"
15:35 Jean-Pierre Hubaux (EPFL)
"The Data Protection for Personalized Health project"
15:50 - 16:20 Coffee break & poster session
Session 3: Discussion
17:30 CONCLUDING REMARKS: Dimitar Jetchev (EPFL)
INVITED SPEAKERS AND PANELISTS

MICHAEL BAUDIS
UZH, Switzerland
KARSTEN BORGWARDT
ETH Zurich, Switzerland
EMILIANO DE CRISTOFARO
UCL, UK
EMMANOUIL DERMITZAKIS
Univ. Geneva, Switzerland
KHALED EL EMAM
Univ. Ottawa, Canada
JACQUES FELLAY
EPFL, Switzerland
BRYAN FORD
EPFL, Switzerland
JEAN-PIERRE HUBAUX
EPFL, Switzerland
DIMITAR JETCHEV
EPFL, Switzerland
OLIVIER MICHIELIN
CHUV, Switzerland
SHAWN MURPHY
Harvard Medical School, USA
GUNNAR RÄTSCH
ETH Zurich, Switzerland
MARK RUBIN
Univ. Bern, Switzerland
DANIEL SCHEIDEGGER
Pres. Swiss Acad. of Medical Sciences
DOMINIQUE SPRUMONT
Univ. Neuchâtel, Switzerland
AMALIO TELENTI
The Scripps Research Institute, USA
JUAN R. TRONCOSO
EPFL, Switzerland
FRANK ÜCKERT
SDSC, Switzerland
EFFY VAYENA
ETH Zurich, Switzerland
OLIVIER VERSCHEURE
SDSC, SwitzerlandWORKSHOP VENUE
Room ELA 1
EPFL, Route Cantonale, CH-1015,
Lausanne, Switzerland
From the EPFL metro stop (A.):
- Head to the tunnel on the west side of the metro stop (B.)
- Take the stairs on your left going up;
- Continue forward until you get to an intersection (C.);
- Take the path to your right;
- Continue forward and you should see the ELA building on your left (D.);
- You reached your destination.
WORKSHOP REGISTRATION
Motivation:
With the increasing digitalization of clinical and genomic information, data sharing is becoming the keystone for realizing the promise of personalized medicine to its full potential. Several initiatives, such as the Patient-Centered Clinical Research Network (PCORNet) in USA, eTRIKS/TranSMART in EU, the Swiss Personalized Health Network (SPHN) in Switzerland, and the Global Alliance for Genomics and Health (GA4GH), are laying down the foundations for new biomedical research infrastructures aimed at interconnecting (so far) siloed repositories of clinical and genomic data. In this global ecosystem, the ability to provide strong privacy and security guarantees in order to comply with strict regulations (e.g., HIPAA in USA or the new GDPR in EU) is crucial, yet extremely challenging to achieve, for biomedical research to be able to scale up. This prompts the need for research and innovation in all aspects of medical data privacy and security, spanning from the design of new privacy-preserving solutions and their integration to existing operational tools to the ethical and legal issues in medical data sharing.
The goal of this workshop is to discuss the latest advances in the field and identify the key elements from the technical, ethical and legal perspectives that will ensure a more privacy-conscious data sharing in the near future, thus paving the way to new and still unexplored use cases.
Related Regulations and Recommendations:
- WMA Declaration of Taipei on Ethical Considerations Regarding Health Databases and Biobanks
- Recommendation CM/Rec(2016)6 of the Committee of Ministers to Member States
on Research on Biological Materials of Human Origin - EU General Data Protection Regulation (GDPR)
- Swiss Federal Act on Data Protection
IN COLLABORATION WITH:


