Workshop on Secure, Privacy-Conscious Data Sharing
15th February 2018 -- EPFL, Switzerland
The workshop included a series of short talks, two keynotes, one poster session and one panel. Recording will be available now.
The workshop was held at the facilities of EPFL (École Polytechnique Fédérale de Lausanne), Switzerland, on the 15th of February 2018.
The workshop featured many invited talks by renown authorities of the computer security and personalized health fields.
100+ scholars of various disciplines (medicine, biology, computer science, law, ethics,...) participated in the event. All the material (slides and videos) is now available online.
Session 1: Problems and requirements
Session 2: Solutions
Session 3: Discussion
INVITED SPEAKERS AND PANELISTS
Room ELA 1
EPFL, Route Cantonale, CH-1015,
From the EPFL metro stop (A.):
- Head to the tunnel on the west side of the metro stop (B.)
- Take the stairs on your left going up;
- Continue forward until you get to an intersection (C.);
- Take the path to your right;
- Continue forward and you should see the ELA building on your left (D.);
- You reached your destination.
With the increasing digitalization of clinical and genomic information, data sharing is becoming the keystone for realizing the promise of personalized medicine to its full potential. Several initiatives, such as the Patient-Centered Clinical Research Network (PCORNet) in USA, eTRIKS/TranSMART in EU, the Swiss Personalized Health Network (SPHN) in Switzerland, and the Global Alliance for Genomics and Health (GA4GH), are laying down the foundations for new biomedical research infrastructures aimed at interconnecting (so far) siloed repositories of clinical and genomic data. In this global ecosystem, the ability to provide strong privacy and security guarantees in order to comply with strict regulations (e.g., HIPAA in USA or the new GDPR in EU) is crucial, yet extremely challenging to achieve, for biomedical research to be able to scale up. This prompts the need for research and innovation in all aspects of medical data privacy and security, spanning from the design of new privacy-preserving solutions and their integration to existing operational tools to the ethical and legal issues in medical data sharing.
The goal of this workshop is to discuss the latest advances in the field and identify the key elements from the technical, ethical and legal perspectives that will ensure a more privacy-conscious data sharing in the near future, thus paving the way to new and still unexplored use cases.
Related Regulations and Recommendations:
- WMA Declaration of Taipei on Ethical Considerations Regarding Health Databases and Biobanks
- Recommendation CM/Rec(2016)6 of the Committee of Ministers to Member States
on Research on Biological Materials of Human Origin
- EU General Data Protection Regulation (GDPR)
- Swiss Federal Act on Data Protection