schedule


PROGRAM

The workshop included a series of short talks, two keynotes, one poster session and one panel. Recording will be available now.

venue


VENUE

The workshop was held at the facilities of EPFL (École Polytechnique Fédérale de Lausanne), Switzerland, on the 15th of February 2018.

speakers


SPEAKERS

The workshop featured many invited talks by renown authorities of the computer security and personalized health fields.

register


REPORT

100+ scholars of various disciplines (medicine, biology, computer science, law, ethics,...) participated in the event. All the material (slides and videos) is now available online.

WORKSHOP PROGRAM

09:30 - 09:55 Registration & Coffee

09:55 Welcome & Introduction


10:00 OPENING SPEECH: Daniel Scheidegger (Pres. Swiss Acad. of Medical Sciences)


Session 1: Problems and requirements

10:15 KEYNOTE: Amalio Telenti (The Scripps Research Institute)
               "The data of 150,000 human genomes"

10:55 Frank Ückert (Deutsches Krebsforschungszentrum)
               "Work under German Data Protection Laws"

11:20 Effy Vayena (ETH Zurich)
               "SPHN’s ethical framework for responsible data framework"

11:35 Mark Rubin (Univ. Bern)
               "Precision Oncology Security Considerations: Preparing for SPHN-PHRT Driver Oncology Projects"

11:50 Emmanouil Dermitzakis (Univ. Geneva)
               "Data privacy and protection in the era of multi-omics"

12:05 Gunnar Rätsch (ETH Zurich)
               "Sharing Global Knowledge about BRCA1/2"

12:20 Karsten Borgwardt (ETH Zurich)
            "The Personalized Swiss Sepsis Study (PSSS)"


12:35 - 13:35 Lunch break


Session 2: Solutions

13:35 KEYNOTE: Shawn Murphy (Harvard Medical School)
              "Instrumenting the Health Care Enterprise for Discovery in the Course of Clinical Care"

14:15 Dominique Sprumont (Univ. Neuchâtel)
                "Data Protection Law and Personalized Health: the sun after the storm?"

14:30 Michael Baudis (UZH)
            "Genome Beacons for Data Discovery - Technical advances in a challenging environment"

14:45  Khaled El Emam (Univ. Ottawa)
            "Large Scale Anonymization of Clinical Data"

15:10  Emiliano de Cristofaro (UCL)
            "Cryptographic Protocols for Privacy-Preserving Genomic Testing"

15:35 Jean-Pierre Hubaux (EPFL)
            "The Data Protection for Personalized Health project"


15:50 - 16:20 Coffee break & poster session


Session 3: Discussion

16:20 PANEL: "Definition of the next steps, notably in view of  SPHN and PHRT"
            Chair: Jacques Fellay
            Participants: Bryan Ford, Olivier Michielin, Juan R. Troncoso, Olivier Verscheure

17:30 CONCLUDING REMARKS: Dimitar Jetchev (EPFL)


INVITED SPEAKERS AND PANELISTS

Michael Baudis
MICHAEL BAUDIS
UZH, Switzerland
Karsten Borgwardt
KARSTEN BORGWARDT
ETH Zurich, Switzerland
Manolis
EMMANOUIL DERMITZAKIS
Univ. Geneva, Switzerland
Khaled El Emam
KHALED EL EMAM
Univ. Ottawa, Canada
JFellay
JACQUES FELLAY
EPFL, Switzerland
Bryan Ford
BRYAN FORD
EPFL, Switzerland
JP
JEAN-PIERRE HUBAUX
EPFL, Switzerland
DJetchev
DIMITAR JETCHEV
EPFL, Switzerland
Olivier Michielin
OLIVIER MICHIELIN
CHUV, Switzerland
Shawn Murphy
SHAWN MURPHY
Harvard Medical School, USA
Gunnar Ratsch
GUNNAR RÄTSCH
ETH Zurich, Switzerland
Mark Rubin
MARK RUBIN
Univ. Bern, Switzerland
Scheidegger
DANIEL SCHEIDEGGER
Pres. Swiss Acad. of Medical Sciences
Dominique Sprumont
DOMINIQUE SPRUMONT
Univ. Neuchâtel, Switzerland
Amalio Telenti
AMALIO TELENTI
The Scripps Research Institute, USA
Troncoso
JUAN R. TRONCOSO
EPFL, Switzerland
FrankUeckert
FRANK ÜCKERT
SDSC, Switzerland
Effy Vayena
EFFY VAYENA
ETH Zurich, Switzerland
Olivier Verscheure
OLIVIER VERSCHEURE
SDSC, Switzerland

WORKSHOP VENUE

Room ELA 1
EPFL, Route Cantonale, CH-1015,
Lausanne, Switzerland

From the EPFL metro stop (A.):

  1. Head to the tunnel on the west side of the metro stop (B.)
  2. Take the stairs on your left going up;
  3. Continue forward until you get to an intersection (C.);
  4. Take the path to your right;
  5. Continue forward and you should see the ELA building on your left (D.);
  6. You reached your destination.

WORKSHOP REGISTRATION

Motivation:

With the increasing digitalization of clinical and genomic information, data sharing is becoming the keystone for realizing the promise of personalized medicine to its full potential. Several initiatives, such as the Patient-Centered Clinical Research Network (PCORNet) in USA, eTRIKS/TranSMART in EU, the Swiss Personalized Health Network (SPHN) in Switzerland, and the Global Alliance for Genomics and Health (GA4GH), are laying down the foundations for new biomedical research infrastructures aimed at interconnecting (so far) siloed repositories of clinical and genomic data. In this global ecosystem, the ability to provide strong privacy and security guarantees in order to comply with strict regulations (e.g., HIPAA in USA or the new GDPR in EU) is crucial, yet extremely challenging to achieve, for biomedical research to be able to scale up. This prompts the need for research and innovation in all aspects of medical data privacy and security, spanning from the design of new privacy-preserving solutions and their integration to existing operational tools to the ethical and legal issues in medical data sharing.

The goal of this workshop is to discuss the latest advances in the field and identify the key elements from the technical, ethical and legal perspectives that will ensure a more privacy-conscious data sharing in the near future, thus paving the way to new and still unexplored use cases.

 

Related Regulations and Recommendations:

IN COLLABORATION WITH:

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